He's been involved with the Debra charity for a while. As someone who suffers with epidermolysis bullosa I can attest to how horrible a condition it is and it's fantastic to see it being highlighted by Sounness and co. I believe Eddie Vedder is involved with Debra in the states and Tom Holland's Brothers Trust has been involved over the last few years. There was a fantastic film made back in the early 2000s, and picked up by Channel 4, called The Boy Who's Skin Fell Off. I think it's still available on demand and well worth the watch if you're looking for more understanding of how the condition affects families. The "boy" in question was actually a 36 year old man and a born entertainer who will make you belly laugh while watching it.