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3 minutes ago, Honest Saints Fan said:

Oh sjc, I've no idea what to say. She is absolutely adorable and so strong. I can't imagine what you are going through. 

Don't worry HSF, nobody knows what to say really. Normal everyday conversation is a welcome distraction to be honest. 

Sakura's doing well in spite of the treatment, laughing and giggling every day. Close to walking and talking too!

Just your typical 10 month old girl really.

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38 minutes ago, supermik said:

Thoughts are with you.

Thanks mate. Appreciate it. 

38 minutes ago, G_Man1985 said:

Does Sakura mean anything in Japanese? It's a great name btw

Thanks! It means Cherry blossom in Japanese. 

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2 hours ago, sjc said:

Don't worry HSF, nobody knows what to say really. Normal everyday conversation is a welcome distraction to be honest. 

Sakura's doing well in spite of the treatment, laughing and giggling every day. Close to walking and talking too!

Just your typical 10 month old girl really.

I wish you all the luck and good fortune in the world bud, keep your heed up mate and take each day as it comes. God knows I know the complete helplessness you're probably feeling. Kids are resilient though, hope everything turns out right for you all

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4 hours ago, sjc said:

Just a wee update on my daughters treatment. (Sorry for the long winded post)

We received the molecular testing results of the tumour back from Tokyo in January which unfortunately told us that it wasn't wilms tumour as the favourability tests suggested but rhabdoid tumour of the kidney which is far more aggressive and the statistics make grim reading.

Sakura's treatment was immediately changed to 30 weeks of chemotherapy and 7 days of radiotherapy. She's just finishing cycle 3 of chemotherapy (cycle = 3 weeks) and completed the radiotherapy last Tuesday. She's doing well in spite of her white blood cell count hitting the floor for about 10 days every cycle which has resulted in 4 blood & platelet transfusions to date.

Recent MRI & CT Scans have shown no metastases (relapse) which is good news. We're currently living in the hospital which whilst isn't ideal it's good that we're all together for each other.

One step at a time continues to be the way forward for us here. Gambatte as they say in Japan!

The outdoor pic is from 3 weeks ago when we were allowed to take Sakura home for 2 days before her 3rd chemotherapy cycle & radiotherapy started.....was nice to feel normal again!

 

IMG-20170323-WA0002.jpg

IMG-20170323-WA0000.jpg

Struggling with words here mate, but hope you all kick the f**k out of that horrible disease and get home soon. 

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Here's me feeling down because the wee one is toiling with teething and a cough and you're going through that SJC. Certainly puts things in perspective and I wish the three of you nothing but the best. Sakura looks a wee darling and I hope she fights this disease and kicks its fucking stones. 

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19 hours ago, heedthebaa said:

I wish you all the luck and good fortune in the world bud, keep your heed up mate and take each day as it comes. God knows I know the complete helplessness you're probably feeling. Kids are resilient though, hope everything turns out right for you all

 

18 hours ago, Bobby Skidmarks said:

Struggling with words here mate, but hope you all kick the f**k out of that horrible disease and get home soon. 

 

17 hours ago, Rugster said:

Here's me feeling down because the wee one is toiling with teething and a cough and you're going through that SJC. Certainly puts things in perspective and I wish the three of you nothing but the best. Sakura looks a wee darling and I hope she fights this disease and kicks its fucking stones. 

 

1 hour ago, Melanius Mullarkey said:

Perspective etc.  All the best sjc.  Your daughter looks like a wee cracker and a fighter.

(ditch the shades though, m9, you look like you're on CHiPs).

Cheers guys for your kind and positive words of support. Appreciated.

PS - I'm old enough to remember the TV show, Chips! Love my aviator shades :)

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Has anyone had any bother with the tommee tippee perfect prep machine ? Seeing some horror stories in the news recently. My wee girl is only 10 weeks old so she cries a bit anyway. Machine was brand new and works a treat but not sure if I should be concerned. Possibly an English problem with hard water compared to our softer water ?

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41 minutes ago, Believe The Hype said:

Has anyone had any bother with the tommee tippee perfect prep machine ? Seeing some horror stories in the news recently. My wee girl is only 10 weeks old so she cries a bit anyway. Machine was brand new and works a treat but not sure if I should be concerned. Possibly an English problem with hard water compared to our softer water ?

Open it up and check the pipes aren't mouldy mate. 

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Just a wee update on my daughters treatment. (Sorry for the long winded post)
We received the molecular testing results of the tumour back from Tokyo in January which unfortunately told us that it wasn't wilms tumour as the favourability tests suggested but rhabdoid tumour of the kidney which is far more aggressive and the statistics make grim reading.
Sakura's treatment was immediately changed to 30 weeks of chemotherapy and 7 days of radiotherapy. She's just finishing cycle 3 of chemotherapy (cycle = 3 weeks) and completed the radiotherapy last Tuesday. She's doing well in spite of her white blood cell count hitting the floor for about 10 days every cycle which has resulted in 4 blood & platelet transfusions to date.
Recent MRI & CT Scans have shown no metastases (relapse) which is good news. We're currently living in the hospital which whilst isn't ideal it's good that we're all together for each other.
One step at a time continues to be the way forward for us here. Gambatte as they say in Japan!
The outdoor pic is from 3 weeks ago when we were allowed to take Sakura home for 2 days before her 3rd chemotherapy cycle & radiotherapy started.....was nice to feel normal again!
 
IMG-20170323-WA0002.thumb.jpg.5af279bf4471e0c78cb957b65e0ba77e.jpg
IMG-20170323-WA0000.thumb.jpg.6181a9733d4710791a432123dd0be3e2.jpg


She looks a cracker mate. Hope all goes well and she can get on with just being a bairn
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8 hours ago, Believe The Hype said:

Has anyone had any bother with the tommee tippee perfect prep machine ? Seeing some horror stories in the news recently. My wee girl is only 10 weeks old so she cries a bit anyway. Machine was brand new and works a treat but not sure if I should be concerned. Possibly an English problem with hard water compared to our softer water ?

I've had mine 6 months. Opened the back and checked it a couple of weeks ago, it was fine.

Had someone text me about watchdog doing a story about the filters not actually filtering anything out. 

I top it up with cooled down boiled water, change the filters and do a cleaning cycle regularly.

It would take a lot for me to stop using, its too handy! 

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We have it, no issues. I know people up here who have had issues but seems to be those who have the white machine. We have the black version. 


My missus spent a while arguing with me that the woman from Alness that went public with that story "definitely isn't a mink"

I pulled ours apart to find nothing. Lazy bassa's probably not been cleaning it.
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On 27/03/2017 at 13:07, sjc said:

Just a wee update on my daughters treatment. (Sorry for the long winded post)

We received the molecular testing results of the tumour back from Tokyo in January which unfortunately told us that it wasn't wilms tumour as the favourability tests suggested but rhabdoid tumour of the kidney which is far more aggressive and the statistics make grim reading.

Sakura's treatment was immediately changed to 30 weeks of chemotherapy and 7 days of radiotherapy. She's just finishing cycle 3 of chemotherapy (cycle = 3 weeks) and completed the radiotherapy last Tuesday. She's doing well in spite of her white blood cell count hitting the floor for about 10 days every cycle which has resulted in 4 blood & platelet transfusions to date.

Recent MRI & CT Scans have shown no metastases (relapse) which is good news. We're currently living in the hospital which whilst isn't ideal it's good that we're all together for each other.

One step at a time continues to be the way forward for us here. Gambatte as they say in Japan!

The outdoor pic is from 3 weeks ago when we were allowed to take Sakura home for 2 days before her 3rd chemotherapy cycle & radiotherapy started.....was nice to feel normal again!

 

IMG-20170323-WA0002.jpg

IMG-20170323-WA0000.jpg

My thoughts are with you. The shades are good - you look like Maverick from Top Gun after he hit hard times. 

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