Jacksgranda Posted October 3, 2023 Share Posted October 3, 2023 1 minute ago, Honest Saints Fan said: It's absolutely amazing the way that prognosis is changing. Take my cancer, myeloma. It has has the fastest rate of new lines of treatment out of any cancer. The 5 year statistic data is so out of date they would need to re-do it every year. Since I was diagnosed I have lost count the number of new drugs that have been approved and there's hundreds more still being looked at. To end on an even more positive note... STILL IN REMISSION BABY! 5 years since diagnosis on Sunday. Feels like a milestone. Great news! It certainly is! 1 Quote Link to comment Share on other sites More sharing options...
superwell87 Posted October 3, 2023 Share Posted October 3, 2023 12 minutes ago, Honest Saints Fan said: It's absolutely amazing the way that prognosis is changing. Take my cancer, myeloma. It has has the fastest rate of new lines of treatment out of any cancer. The 5 year statistic data is so out of date they would need to re-do it every year. Since I was diagnosed I have lost count the number of new drugs that have been approved and there's hundreds more still being looked at. To end on an even more positive note... STILL IN REMISSION BABY! 5 years since diagnosis on Sunday. Feels like a milestone. That's great news to hear mate! 1 Quote Link to comment Share on other sites More sharing options...
djchapsticks Posted October 4, 2023 Share Posted October 4, 2023 16 hours ago, Honest Saints Fan said: It's absolutely amazing the way that prognosis is changing. Take my cancer, myeloma. It has has the fastest rate of new lines of treatment out of any cancer. The 5 year statistic data is so out of date they would need to re-do it every year. Since I was diagnosed I have lost count the number of new drugs that have been approved and there's hundreds more still being looked at. To end on an even more positive note... STILL IN REMISSION BABY! 5 years since diagnosis on Sunday. Feels like a milestone. Chuffed to hear this! Brilliant news! 1 Quote Link to comment Share on other sites More sharing options...
Sonam Posted April 9 Share Posted April 9 Acute Lymphoblastic Luekemia (A.L.L.) After Allogenic (by donor) Stem Cell Transplant Remission is tough, doubt I will live to retire. 80% chance for 45 year old with ALL returning in 5 years!! Still here, anyone with cancer feel free to PM me. I can share a lot 12 Quote Link to comment Share on other sites More sharing options...
Sonam Posted April 9 Share Posted April 9 Maggies & Macmillan help out, call them ASAP when diagnosed. 0 Quote Link to comment Share on other sites More sharing options...
Sonam Posted April 9 Share Posted April 9 Oral morphine vs Oxycodone for me.... Even now 0 Quote Link to comment Share on other sites More sharing options...
Popular Post scottsdad Posted April 9 Popular Post Share Posted April 9 An aside. Every week we visit my mum. Every week she slips the kids a pound or two. On Saturday we went to Tesco in Alloa after visiting. My daughter put her couple of quid in the Marie Curie tin. When I asked why she just said "Grandpa" It got me. By the time I got home I was blubbing. She is 13, was 12 when cancer took him. They were very close. 24 Quote Link to comment Share on other sites More sharing options...
Sonam Posted April 9 Share Posted April 9 17 minutes ago, scottsdad said: An aside. Every week we visit my mum. Every week she slips the kids a pound or two. On Saturday we went to Tesco in Alloa after visiting. My daughter put her couple of quid in the Marie Curie tin. When I asked why she just said "Grandpa" It got me. By the time I got home I was blubbing. She is 13, was 12 when cancer took him. They were very close. FFS, tragic. Tears for you! Stay positive 0 Quote Link to comment Share on other sites More sharing options...
Sonam Posted April 9 Share Posted April 9 On 03/10/2023 at 15:39, Honest Saints Fan said: It's absolutely amazing the way that prognosis is changing. Take my cancer, myeloma. It has has the fastest rate of new lines of treatment out of any cancer. The 5 year statistic data is so out of date they would need to re-do it every year. Since I was diagnosed I have lost count the number of new drugs that have been approved and there's hundreds more still being looked at. To end on an even more positive note... STILL IN REMISSION BABY! 5 years since diagnosis on Sunday. Feels like a milestone. I join Maggies zoom calls each week, work let me. For Highlands, majority of our group have Myeloma. Tough indeed, heard all about it. Maggies & MacMillan are best!!! 0 Quote Link to comment Share on other sites More sharing options...
TxRover Posted April 10 Share Posted April 10 7 hours ago, Sonam said: I join Maggies zoom calls each week, work let me. For Highlands, majority of our group have Myeloma. Tough indeed, heard all about it. Maggies & MacMillan are best!!! Very encouraging to hear a workplace allowing that, I just wish it was more common over here. Sounds like you’re getting the support you need to progress, don’t rule out that making retirement…even if it’s just to piss off some pols. Stay strong and feel free to share tales and tips, God knows there’s enough people around that can benefit from it. 1 Quote Link to comment Share on other sites More sharing options...
Sonam Posted April 10 Share Posted April 10 Best thread on the forum BTW!!! 0 Quote Link to comment Share on other sites More sharing options...
Sonam Posted April 10 Share Posted April 10 Anyone with cancer, want to chat, PM me. I know A LOT!!! 0 Quote Link to comment Share on other sites More sharing options...
Popular Post Honest Saints Fan Posted May 1 Popular Post Share Posted May 1 Today is my 5th rebirthday after stem cell transplant . Still in "remission". Have clinic later this month so hopefully remains that way 45 Quote Link to comment Share on other sites More sharing options...
Jacksgranda Posted May 1 Share Posted May 1 1 hour ago, Honest Saints Fan said: Today is my 5th rebirthday after stem cell transplant . Still in "remission". Have clinic later this month so hopefully remains that way Good, long may it last! 0 Quote Link to comment Share on other sites More sharing options...
Sonam Posted May 1 Share Posted May 1 10 hours ago, Honest Saints Fan said: Today is my 5th rebirthday after stem cell transplant . Still in "remission". Have clinic later this month so hopefully remains that way Wow! Love to ya brother. Remission isn't easy, carpe diem. 0 Quote Link to comment Share on other sites More sharing options...
Popular Post Jacksgranda Posted June 25 Popular Post Share Posted June 25 My wife just sent a text to say the lump she found on the site of her previous cancer, and which has been growing is nothing to worry about. Thank God! On a sadder note just discovered that a chap I worked for lost his second wife to cancer at New Year. His first wife died of cancer 8 years ago. 22 Quote Link to comment Share on other sites More sharing options...
Jacksgranda Posted June 26 Share Posted June 26 Finally managed to talk to someone who was able to give me the results of my PSA blood test - 0.03, happy with that. 18 Quote Link to comment Share on other sites More sharing options...
Archie McSquackle Posted August 26 Share Posted August 26 I just found out today that my ex-boss passed away at the weekend, roughly a year after being diagnosed. Very fit for his age and was winding down to retirement when it was discovered. Cancer really is a b*****d. 0 Quote Link to comment Share on other sites More sharing options...
BFTD Posted August 27 Share Posted August 27 On 24/07/2023 at 16:56, funky_nomad said: That's me booked in for surgery in a specialist cancer unit in Basingstoke next month to tackle my Colorectal Peritoneal Metastases. They're going to whip out my appendix and "any other bits they don't like the look of" while my peritoneum is wide open, plus a nice dose of hot chemo for pudding. Apparently, the hot chemo aspect of this treatment has improved 5-year survival rates from 5% to around 45% within the last decade or so, which does sound fairly promising. I've been reassured that, with the right recovery regime, I should be able to make my stag do 8 weeks after surgery (albeit booze-free), and be in tip-top shape for my wedding at the end of October. And as an added bonus I'll be looking svelte for the photos!!! Bit scared to ask, but how did things go over the past year? 0 Quote Link to comment Share on other sites More sharing options...
Popular Post funky_nomad Posted August 27 Popular Post Share Posted August 27 10 hours ago, BFTD said: Bit scared to ask, but how did things go over the past year? Way better than I had any right to expect, tbh. Recovery was good enough for me to be mobile for my Stag do in Dublin 8 weeks later (and I even managed a few medicinal Guinnesses...), and I managed 9 holes of golf on the morning of my wedding before "dancing" the night away until 1:00am (albeit with a couple of 20 minutes breaks in a darkened room to recover). Other than those 2 events, I didn't over-stretch myself (I even stayed off the golf course until March, which was a challenge), and I do get more tired standing at gigs than I used to, but that's probably more of an age thing, tbh. I'm actually just home from a check up with my oncologist this morning, and I'm now moving from 3-monthly scans to 6-monthly, so all looks good on that front. It's really hard to believe that about a year ago I was struggling on the drive home from Basingstoke (which was probably the hardest part of the whole experience). I have spoken to someone else who went through the same op though, and they really struggled with the recovery, so I consider myself to be very, very lucky. 36 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.